Well I am happy to report that we are successfully making it through our colistin eflow treatments with ease now a days. So the new treatment schedule is going much better and faster without crying and arguing...lol Someone pointed out to me that my counter looked like it belonged in a hospital so i thought i would take a few photos of all the supplies. Where do you keep your supplies? Are they in one spot or all over the house. Ours are in one organized place on our counter but of course the vest is elsewhere and the nebulizer moves to the current comfort spot.The comfort spot moves from the master bed to the living room depending on the day.

I also took a photo of her current medications. Most of these are taken twice daily with the exception of zithromax which is 3 times weekly, pulmozyme is once daily, and albuterol is once daily.

The cool looking round blue thing is her new eflow and I really love this machine. The treatment takes 4 minutes, life would be so much easier if all of her nebs took 4 minutes.Well we got this med schedule down pat, so I'm sure that the docs will call any day and change it...lol it always seems to change when we get it down.

Breezy has been feeling good the last few weeks and has been very active. I really think these meds are working.Breezy says that the new meds are defeating mucus. She has been full of energy I think that one of the meds has something to do with it. Has anyone else felt energetic on Nasonex, Levaquin or Colistin?

Breezy sounds a bit congested today so we are hoping its just some mucus and not the start of her getting sick.

I just read this article about gene therapy US researchers are working on.The successful development of the gene therapy could cure CF. In the UK they are planning to start a large scale clinical trial this year.The hope is this gene therapy that replaces the defective CF gene which disables or destroys a protein known as CFTR will result in a cure.

If you would like to read the article CLICK HERE

I hope that the clinical trials prove to be successful. There is not a day that goes by that I don't wish i could just make it all better for my Breezy and all the other CFers.

I just wanted to give everyone a quick update on Breezy's new meds. Like i said last week the levaquin is still going very well. And the colistin is improving.Every time(twice a day) she uses the eflow with a little less resistance. We haven't finished a full session with complete ease yet but we are getting there.

Breezy calls the colistin the pancake medicine. She thinks it smells like pancakes, has anyone ever notices that or is it just Breezy?

Thanks a bunch to every ones comments about the levaquin, colistin and eflow. I really appreciate all of the advice.

Breezy begged me all week to let her sign her Valentine's Day cards and on Sunday I finally gave in. She picked out barbie cards and signed all of them. Her hand writing is really impressive. She is growing way to fast.Breezy also made treat bags with candy and valentines goodies for all of her friends. She is so excited for the party.Mrs.Barrow told the class they all get to play mailman on Friday.We signed up to bring strawberries...(i know all the good stuff was taken)but other than that we are all ready for the festivities.

We had a great weekend with some of our friends that came down to visit. We all took Breezy to the carnival. She had a blast on all of the rides. And all of us took on an old western photo. I know is sounds dorky but it was tons of fun and we kept laughing at the photos, It was great. Breezy had so much fun that she has been telling everyone what a great time she had at the carnival.

Yesterday I was able to pick up the levaquin at my local pharmacy early in the morning before Breezy even woke up. So she started the levaquin with her usual morning medications and again that night. And much to my surprise she loves it, this is the first antibiotic that i haven't had to fight with her about.

This morning Breezy's eflow and colistin was delivered. Oh man there was a lot in the box and this was the first treatment/med/machine that i have had to learn without a nurse.While it looked overwhelming it turned out to be easier than i thought. I was hoping for the same wonderful experience we had with the levaquin. Breezy was so excited that the eflow was new and exciting.....and then she tasted the colistin. Wow the reaction was terrible she hates it, the awesome eflow that only takes 4 minutes to deliver medication took over 30 minutes of crying. She asked me if i had one that tasted better. Poor baby, I think after a few days she will be fine with the colistin.

So tomorrow is Funny Dress Friday at Breezy's school so I'm off to help Breezy gather all of the crazy clothes she wishes to but together. The other day she told me she was going to put 14 socks and one shoe on her head..lol

I love Valentine's Day so when Breezy's teacher sent home a note asking parents to help their child make a mail box I jumped on it. I scavenged through my house looking for the perfect box. I found a great thick children's shoe box and we got started. Nate cut a nice mail slot in the top while Breezy painted some wrapping paper.We were so impatient that Breezy and I blow dried the the paint.Then we hot glued the paper on to the box and added a couple of bows. Now Breezy is ready to receive love notes. I can't wait until next week so we can make all of the kids treat bags and yummy heart shaped food. Her class party is on Friday and it is also my Birthday so we will be parting all day :)

Breezy has a plan for the future she says:
“I think when I grow up on Monday and Tuesday I’m going to be a Veterinarian and on Friday and Wednesday I’m going to be a Children’s Doctor and on Saturday I’m going to be a Bubble Artist.”

We had a good week. Breezy has done great in school and has been feeling creative lately so she painted a nice rainbow for me. When I asked her what she was going to paint she said "I will give you a clue you take rain and sunshine and you get a……..Rainbow!!”